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10th FSCDR Symposium

THE NEXT GENERATION
Promoting Sickle Cell Research and Care - Major Advances

NATIONAL MEETING SPONSOR
bluebirdbio

9:00am EDT

Sickle Cell Decision Aid Room 213Lakshmanan Krishnamurti, MD

11:00am EDT

The Black Health and Wellbeing Exposé Grand A/BDwight Bullard • Dale Holeness • Pam Keith • Lanetta Bronté-Hall, MD, MPH, MSPH

1:00pm EDT

Community Health Workers WorkshopLIMITED Room 220Evanise Lexima, BS • Shirley Johnson, BA, LSW • Nancy Green, MD • Wally Smith, MD • Donnell Ivy, MD, MPH • Lanetta Bronté-Hall, MD, MPH, MSPH • Lewis L. Hsu, MD, Ph.D • Donna L. Godfrey, PhD HRSA SCDTDP Data Collection and MeasurementLIMITED Room 221Patricia L Kavanagh • Lisa M. Shook, MA, MCHES • Mary Hulihan, MPH • Donnell Ivy, MD, MPH • Suzette Oyeku, MD, MPH • Lauren Whiteman, MPH • Elissa Faro, PhD • Allison King, MD, MPH, PhD • Marsha Treadwell

9:00am EDT

The Bone Marrow Transplant Clinical Trials NetworkLIMITED Grand A/BLakshmanan Krishnamurti, MD Sickle Cell Decision Aid Room 213Lakshmanan Krishnamurti, MD

10:30am EDT

Social MediaLIMITED Room 223A.S.A.P. • Crystal Taylor, MPH Candidate • Charles Jonassaint, PhD • Tosin Ola, RN/BSN • Cassandra Trimnell • Aisha Lanette Walker Therapies for End Organ Damage: Kidney and LungLIMITED Grand A/BKenneth Ataga, MD, MBBS • Elizabeth S. Klings, MD • Rafal Pawlinski, PhD Time to Consider an Integrative and Complementary Approach to SCDLIMITED Room 220Claudia R. Morris, MD • Ify Osunkwo MD, MPH • James Eckman • Mihir Gupta, MD • Caterina Minniti, MD • Fuad El Rassi, MD

12:30pm EDT

Lunch (Included with registration) Palm A/B

12:45pm EDT

“The Blood and Marrow Transplant Clinical Trials Network (BMT CTN) 1507 informational session.”LIMITED Room 220Michael DeBaun, MD, MPH • Mark Walters

2:10pm EDT

Fatigue/Pain/Depression/Cognitive ImpairmentLIMITED Room 222Kalpna Gupta, PhD (2016 Scientific Chair) • Deepika Darbari MD • Wally Smith, MD • Daniel Armstrong, PhD • Dongsheng Cai, MD, PhD • Cheryl Stucky, PhD Novel Approaches for Fetal Hemoglobin InductionLIMITED Room 221Betty Pace, MD (2017 Scientific Chair) • Susan Perrine-Faller, MD • Anindya Bagchi, PhD • Aisha Lanette Walker • Winfred Wang Novel Mechanisms for End Organ Damage: Priapism and CoagulationLIMITED Grand A/BSamir K. Ballas • Gregory Kato, MD • Peter Gillette, MD • Xia, Yang Nursing MattersLIMITED Room 223Yvonne Carroll • Pat Corley

4:30pm EDT

East Meets West - Global Outlook on Sickle Cell DiseaseLIMITED Grand A/BMichael DeBaun, MD, MPH • Baba Inusa • Kalpna Gupta, PhD (2016 Scientific Chair) • Lakshmanan Krishnamurti, MD

6:30pm EDT

Poster Session Grand CBaptiste, Ayanna • Vandy Black • Tim Campbell • Michelle Case • Mary Debarr • Kamini Doobay • Pope III, Evans • Umut Gurkan • Gray, Heather • Williams, Justin • Vasundhara Posavanike Kailasnath • Patricia L Kavanagh • Anderson, Lindsay • Angela Clare Hoffman, LMT • Sri Lakshmi Hyndavi Yeruva, M.D. • Sanger, Maureen • Brandi McClain • Lisa M. Shook, MA, MCHES • Crawford Strunk, MD • Fuad El Rassi, MD • Jane Little, MD • Andrew Campbell, MD • Stephen C. Nelson, MD • Payal Desai, MD • Robin Miller • Lauren Whiteman, MPH • Mary Hulihan, MPH • Bakshi, Nitya • Aluya Oseghale • Lewis L. Hsu, MD, Ph.D • Angela Rivers MD., Ph.D. • Lori E. Crosby, PsyD • Tiffany Rattler • John D Roberts • Diana Ross • Tehseen, Sarah • Jane E Schreiber • Sergey S. Shevkoplyas • Daniel Mouaffo Sop • Revathy Sundaram • Lisa Thaniel • Carullo, Veronica • Caroline Wilder

9:00am EDT

Sickle Cell Decision Aid Room 213Lakshmanan Krishnamurti, MD

10:30am EDT

EHRA Plenary Talks Grand A/BLeila E. Jerome Clay, MD • Clinton Joiner, MD, PhD • Abdullah Kutlar, MD • Harvey Luksensburg, MD (NIH/NHLBI) • Donald Abrams, MD • Thomas Coates, MD • Omar Niss, MD • Michael Taylor, MD • Angela Rivers MD., Ph.D. • Malgorzata Kasztan, PhD • Rafal Pawlinski, PhD

12:45pm EDT

Lunch (Included with registration) Palm A/B

2:00pm EDT

Breakout Session - BASIC/TRANSLATIONAL SCIENCELIMITED Room 220Abdulmalik, Osheiza • Mary Hulihan, MPH • Valentino, Jill • Josh Lehrer, MD • Caterina Minniti, MD • Gbotosho, Oluwabukola • Tanya David, PhD • Martin Safo, PhD • Huy Tran • Nagavedi S Umapathy Breakout Session - CLINICAL TRIALSLIMITED Room 221Khurana, Monica • Josh Lehrer, MD • Dr. Laura DeCastro • Lensa Idossa • Sri Lakshmi Hyndavi Yeruva, M.D. • Sophie Lanzkron MD, MHS • Krupa Sivamurthy Breakout Session - PATIENT EDUCATIONLIMITED Grand A/BDaniel Mouaffo Sop • Marsha J. Treadwell, PhD • Williams, Justin • Angela Clare Hoffman, LMT • Lakshmanan Krishnamurti, MD • Caterina Minniti, MD • Joseph Lunyera, MD, PhD • Reader, Steven Breakout Session - THERAPY AND HEALTH UTILIZATIONLIMITED Room 223Djamila Labib Ghafuri • Sarah-Jo Stimpson • Bernard DAUVERGNE • Caterina Minniti, MD • Maria Nepa • Ann Pham • Rodney Theodore

4:15pm EDT

Sickle Cell Disease Patient Bill of Rights Grand A/BMichael DeBaun, MD, MPH

5:10pm EDT

PCOI 2016 Meeting: Our VoiceLIMITED Grand A/BLakiea Bailey, PhD

6:30pm EDT

Investigational Drug SymposiumLIMITED Grand A/BAccess Therapeutics • Edwin L. Parsely, DO • Krupa Sivamurthy • Charlie Stark

10:00am EDT

Trainee AbstractsLIMITED Grand A/BMichelle Case • Uhelski, Megan • Barrett, Nadine • Ann Pham • Malgorzata Kasztan, PhD • Jennifer Nwankwo, PhD • Huy Tran • Wang, Ying